Reducing the patient interval for breast cancer: developing a digital intervention using the person-based approach

Abstract

Background: The objective of this study was to facilitate broad discussion about the acceptability of a planned digital intervention (DI) with end-users. Eliciting end-user feedback at the outset of the design phase is central to the Person-Based Approach (PBA) to DI development. Methods: A qualitative design was used to collect data via focus group interviews which were audio-recorded, transcribed verbatim and thematically analysed. Participants (n=28) were sampled purposively based on age, sex and occupation and were either individuals who would potentially use the DI i)for their own healthcare purposes or ii) in an official capacity to recommend to others e.g. Doctors. Findings: Five themes were generated: uncertainty, interest, legitimacy, aesthetics/usability, efficiency. Participants were uncertain if a website could help them manage their health but they were interested in trying it. Participants highlighted time as a primary barrier to using a website for this purpose. It was stressed that the website would have to be aesthetically pleasing and easy to use. Furthermore is was discussed that it should be obvious that it was provided by a reputable source e.g. a university/hospital so that they could trust the information. Discussion: Participants were eager and motivated to contribute to research at this early stage. It is now accepted as good practice to elicit end-user/patient views at the design phase of interventions. It is hoped that incorporating the views of these participants into the development of the DI will enhance its acceptability and therefore success.