Exploring Multiple Sclerosis carers’ experiences of participating in a ‘Photovoice Study’ using a framework approach

Abstract

Background: Photovoice is a visual method which is increasingly being used in qualitative heath research for its ability to provide rich and informative data in ‘real-time’. However, there is a paucity of research on evaluating photovoice methodologically in terms of challenges and benefits. The aim of this research was to explore Multiple Sclerosis (MS) carers’ experiences of participating in a photovoice study. Specifically, we wanted to understand the challenges and benefits of the photovoice process from participants’ perspective. Methods: We utilised an open-ended questionnaire with 12 participants who took part in a photovoice study where they took photographs to capture their MS caregiving experiences over a two-week period and wrote narratives explaining each photograph. Participants completed open-ended questions after the photovoice process to reflect on their experiences of undertaking the photovoice study. Data were analysed using framework analysis. Findings: Four themes emerged; ‘experiences of undertaking photovoice’, ‘perceived benefits of photovoice’, ‘challenges of photovoice’ and ‘practical issues’. Discussion: Although there was generally a positive assessment of the photovoice experience, some participants found the process challenging and time-consuming as it involved number of complex steps to complete. Future studies should consider making the process less intrusive by exploring alternative techniques that may improve the speed and effectiveness of the photovoice process. Additionally, some participants reported that undertaking photovoice had a positive impact on their well-being. Further investigation is needed to assess the significance of its impact and long-term effects on individuals using rigorous methodologies.