Relationship between coping strategies, quality of life and emotional health when living with retinitis pigmentosa
AbstractBackground: Retinitis pigmentosa is a degenerative eye condition and identifying key factors to successfully self-manage this condition is important. This study investigated the relationship between engaging (ECS) and disengaging coping strategies (DCS), vision-related quality of life (VRQoL) and emotional health (EH) in adults living at home with retinitis pigmentosa. Method: A cross-sectional, questionnaire study was completed by 105 participants (70 female; mean age 47). Participants completed the following measures: Coping Strategies Inventory - Short Form, the National Eye Institute Visual Functioning Questionnaire 25, Marylands Trait Depression Scale, the Warwick-Edinburgh Mental Well-being Scale and the Subjective Happiness Scale. A two-block hierarchical multiple regression was conducted. Findings: ECS and DCS impacted psychosocial aspects of VRQoL but not overall VRQoL; ECS had a positive association with these psychosocial VRQoL variables (mental health: t=3.45, p<.01; dependency: t=2.11, p<.05) and DCS had a negative association (general health: t=-2.98, p<.01, mental health: t=-5.70, p<.001; role difficulties: t=2.90, p<.01; dependency: t=-3.71, p<.001). EH improved with ECS (depression: t=-2.24, p<.05; mental wellbeing: t=3.74, p<.001; general happiness with life: t=3.74, p<.001) and declined with DCS (depression: t=6.07, p<.001; mental wellbeing: t=-3.21, p<.01; general happiness with life: t=-3.73, p<.001). VRQoL and EH decreased more with increasing DCS than VRQoL and EH improved with increasing ECS. Conclusion: Although ECS improved VRQoL and EH, DCS had a larger impact suggesting that reducing DCS should be prioritised over developing ECS with regards to positively influencing VRQoL and EH in those living with retinitis pigmentosa.
Copyright (c) 2017 G. Garip, K. Anil
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