Implications of stroke for caregiver outcomes: findings from the ASPIRE-S study

Abstract

Background: Informal caregivers are vital to long-term care of stroke survivors. However, caregivers may not receive supports they require from hospitals and community health services, with implications for carer outcomes. This study examined caregiver well-being and satisfaction with services in the context of stroke. Methods: Data was collected as part of the ASPIRE-S study, a prospective study of secondary prevention and rehabilitation 6-months post-stroke. Carer assessment included measuring demographics, satisfaction with care, psychological distress and vulnerability, using established measures. Logistic regression analyses were performed using STATA 12. Findings: Analyses from 162 carers showed dissatisfaction (37.9%) with community and hospital services, and notable levels of anxiety (31.3%) and depressive symptoms (18.8%). Caregiver anxiety was predicted by stroke survivor anxiety (OR=3.47, 95% CI 1.35-8.93), depression (OR=5.17, 95% CI 1.83-14.58) and cognitive impairment (OR 2.35, 95% CI 1.00-5.31). Caregiver depression was predicted by stroke survivor anxiety (OR=4.41, 95% CI 1.53-12.72), and depression (OR=6.91, 95% CI 2.26-21.17). Conclusion: Findings indicate that caregiver and stroke survivor well-being are interdependent. Implementation of early interventions directed at psychological factors are likely to reduce risk of negative outcomes.